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NEWS
Advocates, Educators Praise, Condemn new IDEA The newly passed "Individuals with Disabilities Education Improvement Act of 2004" introduces a number of changes to what was originally known as the Education for All Handicapped Children Act of 1975. But perhaps the only element being welcomed by all concerned is a renewed commitment for the federal government to raise its level of funding. MORE. | FREE E-LETTER


photo of marijuana leaf FOCUS
Medical Marijuana and Us On Monday the Supreme Court listened to arguments that marijuana use be legalized for medical purposes. Is medical marijuana a disability rights issue? asks CAL MONTGOMERY. What would a medical marijuana argument look like in the context of an affirmative approach to disability rights? MORE. | FREE E-LETTER

LIFE on the RAGGED EDGE
drawing of paratransit van No Handicapped in Heaven? There you are, lying in your coffin. They're playing "I Can See for Miles and Miles." "Blind Johnny Can See Now!" says the eulogist, somebody you've never met. Is it really like this? JOHNNY CRESCENDO has a few ideas about a funeral service that is a little bit more, uh, fitting. MORE. | FREE E-LETTER

FOCUS
Stories of accommodation, continued Last month, we published our initial report on the over 100 surveys readers had submitted on their experiences seeking and getting -- or not getting -- accommodations they requested under the Americans with Disabilities Act. Since then, more of you have filled out our survey. Patterns and themes are emerging. Sometimes, requests for accommodation are successful; the process can work. But many times it doesn't. Read more about what you told us READ ARTICLE. | READ INITIAL FINDINGS. | FREE E-LETTER


NEWS
Assisted Suicide Bill On the Move in CA A number of national disability rights groups have opposed efforts to make "assisted suicide" legal, saying such laws are dangerous as long as people with significant disabilities are made to feel that they are burdens on society and their families. Now California is considering an assisted suicide bill like Oregon's. MORE. | FREE E-LETTER


drawing of paratransit van FOCUS
The Re-certification Game "The fight for accessible public transportation seems to have been the crucible for the disability rights movement for much of the last two decades," writes LARRY BIONDI. Now, using ADA regulations, he says, transit companies are working to keep us from riding paratransit services. MORE. | FREE E-LETTER


YOUR LETTERS
Your Turn: Readers comment on recent articles "I admire the courage of the litigants and the ingenuity shown by their counsel in your country," writes Canadian DOUG MACEACHERN about our story The Lawsuit Dilemma (see below). "Thank heavens for the Jarek Molskis. for without them, ADA or no ADA, nothing would have changed," adds DAUN FLYNN. "I have become very frustrated with the lack of understanding and common sense solutions that would help eliminate barriers I encounter everyday," writes JULIA, from Minnesota, commenting on the article The Wrong Message -- Still. These and other readers comment on recent articles from our website. You can add your comments as well. READ LETTERS. | FREE E-LETTER


drawing of steps FOCUS
The Lawsuit Dilemma Today, lawsuits for social change are widely condemned. Yet they're the only real means we have for achieving access. The Americans with Disabilities Act has no federal enforcement mechanism. To get it enforced requires a lawsuit. Along California's central cost, a few disabled people, filing many lawsuits, are loudly condemned in local newspapers and on TV. MARY JOHNSON takes a look at what's behind the furor. MORE. | ADA consultant FRED SHOTZ says the reason disabled people file lawsuits is simple: until they sue, calls for access are simply not taken seriously. MORE. | FREE E-LETTER


REVIEWS
The Formation of 'A Deaf Variety' Alexander Graham Bell's worry about "deaf-mutes marrying deaf-mutes" has been replaced by worrying about aborting on the basis of hearing status, and about the use of genetic technology to end deafness. CAL MONTGOMERY reviews Genetics, Disability, and Deafness from Gallaudet University Press. READ REVIEW. | REVIEW INDEX |FREE E-LETTER


LIFE from the RAGGED EDGE
Remembering The Spotted Owl: Activism And Terri Schiavo During the 1980s in the Pacific Northwest, environmental activists focused their campaign, and hung their hopes, on the fate of the spotted owl for a very practical reason: Americans like owls. Inclusion Daily's DAVE REYNOLDS wonders if Terri Schiavo may be our spotted owl. READ ESSAY. | FREE E-LETTER


FOCUS
Wheelchair "scooter" users nationwide press case for sidewalks, safer highways Across the nation, disabled people who use their wheelchairs and scooters to travel around their towns are pushing for more accessible sidewalks -- or simply the presence of sidewalks in communities that have none. MORE. | FREE E-LETTER


photo of wheelchair racer FOCUS
26.2 Miles of Trouble On Nov. 7, millions of people will cheer the nearly 30,000 athletes running the New York City Marathon. Wheelchair racers now have the legal right to participate in the event. But, as WILLIAM PEACE writes, this does not mean they are being welcomed. MORE. | FREE E-LETTER


Man pushing empty wheelchair The Wrong Message - Still Just in time for Disability Awareness Month, VALERIE BREW-PARRISH revisits the ubiquitous 'try on a disability' simulation exercise -- and finds it still popular, and still terrible as ever. Even gimp groups do it, she writes. But why? READ ARTICLE. | FREE E-LETTER


LIFE from the RAGGED EDGE
sketch of wheelchair Roll Models and the Roiling of Normalcy "I didn't want to walk by her in the hall, and when I had to, when I couldn't avoid it, I walked as close to the wall as I could, away from Gertrude," writes K. D. LAIRD. "I didn't know who she really was, and I never found out." But he started thinking about her again, he writes, "after I nearly passed out at a buddy's house." READ ESSAY. | FREE E-LETTER


FOCUS on communication
Accessible communication is freedom of speech, but . . . People labeled mentally retarded can't write, so they're written off. DON O'CALLAGHAN, who says they've been denied freedom of speech, insists they be given voice- and video-based methods of communication. "No one is even bothering to help tell these people about this technology." O'Callaghan thought the solution was simple. But, he says, he ran into the typical bureaucracy. READ ARTICLE. | FREE E-LETTER


MEDIA CIRCUS
photo of dr. phil Hey, Phil, How's Discrimination Workin' For You? Neal David Sutz is suing TV's Dr. Phil McGraw. He was asked, he says, to sign a studio audience release saying he's not mentally ill -- to be sure he'd be out of the way during the show. Last fall we published a story about Dr. Phil acting pretty much the same way toward a guy who walked with canes. CAL MONTGOMERY takes a look at these not-so-unrelated incidents. MORE. | FREE E-LETTER


drawing of chicory

LIFE from the RAGGED EDGE
Blind Pew Walks Everywhere in Columbus, Ohio "Walking the shoulder of a road, moving slowly with a cane, I feel like Robert Louis Stevenson's Blind Pew -- I'm the blind man who talks to himself as he makes his way to the supermarket," writes STEPHEN KUUSISTO. "It's no exaggeration to say the world of the non-driver is the wayside ditch. My progress is checkered with broken sidewalks that stop as the road wends toward the fast food places and the malls." READ ESSAY. | FREE E-LETTER


LIFE from the RAGGED EDGE
My Grand Deception "Only after joining the disability rights movement did I become aware of the shocking reality that 70 percent of Americans with disabilities are unemployed," writes college professor ED EAMES. "But even without knowing that, when I learned I would soon be totally blind, I knew that keeping my job and ensuring job security must be my major mission." READ ARTICLE. | FREE E-LETTER


FOCUS
Yes, but . . . The Americans with Disabilities Act is constitutional, says the Supreme Court . . . at least some of the Justices say that, about at least the law's Title II . . . that is, at least part of Title II . . . It all comes down to this: Did Congress have any real evidence that states were discriminating against people with disabilities when it passed the ADA? And what is "disability discrimination" anyway? Does it occur when there are steps? Ragged Edge editor MARY JOHNSON takes a look at just what the Justices said in their May 17 ruling. READ ARTICLE | FREE E-LETTER


FOCUS
Accessible travel: better now -- or not? Hotels promised ART BLASER accessible rooms-- but didn't deliver -- so he filed ADA complaints with the U.S. Dept. of Justice. How have those complaints fared? READ UPDATE. | READ ORIGINAL REPORT. | FREE E-LETTER

No rest for disabled travelers Designers of highway rest areas have certainly ignored access, both for deaf travelers and those in wheelchairs, writes ROY LECHTRECK. READ ARTICLE | FREE E-LETTER


LIFE from the RAGGED EDGE
The Smithsonian Shuttle Incident "Five, ten, fifteen minutes passed. It was clear the lift was not going to work. There was no power to the lift. Numerous calls to the supervisor were made. Other passengers were consulted and passersby gawked at the unfolding scene. Finally, I was asked, 'Can you walk at all?'" WILLIAM J. PEACE then did something he would have never done had his 12-year-old son not been with him. Did he do the right thing? Even now, he's not sure. READ STORY. | FREE E-LETTER



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Ragged Edge EXTRA!
'A sheltered workshop is nothing more than a sweatshop' "We were having lunch at a restaurant and the radio was playing," says the Southeast Kansas Independent Living Resource Center's GREG JONES, when they heard an ad for a sheltered workshop. "We were compelled to respond." They started running radio ads, calling them "sweatshops." MORE. | FREE E-LETTER


From our ARCHIVES
Awareness Days send wrong message
Yank out those blindfolds, grab cotton to stuff in your ears, and plop yourself in a wheelchair to navigate around that obstacle course! It's Disability Awareness Day! The problem, wrote VALERIE BREW-PARRISH, is that these programs send the wrong message. MORE. | FREE E-LETTER


WHAT DO YOU THINK of these stories?
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The Supreme Court's Catch-22
Jerry Lewis tells crips, "stay in your house!"
The Supreme Court Garrett Decision
Eugenics: Making a Comeback?
'Disabled for A Day,' Reporter Finds Frustration and Stigma

MORE.

 

WHO WE ARE: Ragged Edge magazine is successor to the award-winning periodical, The Disability Rag. In Ragged Edge, and on this website, you'll find the best in today's writing about society's "ragged edge" issues: medical rationing, genetic discrimination, assisted suicide, long-term care, attendant services. We cover the disability experience in America -- what it means to be a crip living at the start of the 21st century.

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Ragged Edge magazine and Ragged Edge online are publications of The Advocado Press, Inc. a nonprofit 501(c)3 organization founded in 1981 to publish materials on disability rights.

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